Richard has supported my Food For Thought event in 2015. It hits at a difficult time in his work schedule, so I appreciate it all the more. He has also had medical issues from which he has made a near total recovery. He is an inspiration!
Marie’s knew my father’s family from years ago. We reconnected with Hampo and Marie last summer in person. I am so grateful for their support of this fundraiser and for spreading the word on their extensive mailing list and Facebook group.
Here are some of the signs of FTD. These are from the behavioral variant of FTD. Although Lydia has the language variant, at times she did show some of these signs, but we didn’t know it as FTD yet, because she’d been misdiagnosed.
She did have some spending issues–I’m not sure if she was buying multiples because she was going to give gifts, or if she was confused about where she’d put things and bought duplicates to replace them or what.
We saw signs of apathy, which we thought was depression due to the loss of her job at Wells Fargo in their Beverly Hills Wealth Management office in the banking fiasco of 2008, and then when she got another bank job working in a trust department of a bank, that bank was swallowed up by a bigger shark…I mean bank. I thought there was something wrong with Lydia when it took her FOREVER to finish the book, The Help, after the Trust Department job was eliminated.
Lydia, a lifelong coffee drinker, could no longer do the steps she needed to make coffee. She knew what the parts were, but couldn’t pour the hot water into the filter holder to make a single cup because her executive function was being affected. In the time after she was finally diagnosed, Lydia would tie…and retie…and retie…and retie her walking shoes. She also would take a decorative potholder to her room and clean dishtowels…over and over and over again. We’d never seen anything like that, but these were compulsive behaviors and hoarding. After her longer stay at ULCA Medical Center, she would take place mats to her room…over and over and over again. We at least knew she had FTD at this point.
Lydia did have periods of agitation, which started after one of her medications was tapered off too quickly after her grand-mal type seizure.
Lydia did a lot of pacing from her long stay at UCLA Medical Center in 2014 until around March of 2018 when she started showing signs of Parkinsonism which made her lean forward while walking like she was Usain Bolt taking off from the starting block at the Olympics. One of the medications she was on was eliminated, she is on a decreased dose of one anti-seizure med and is on a newer one to help manage the symptoms.
I’m sure Medicare would prefer people don’t have to go through this obviously broken system.
Jan. 30 in board and care
Jan. 31 in UCLA Reagan
Feb.1-18 in Sherman Oaks Hospital
Feb.18-25 in board and care
Feb. 25-28 in Los Robles Hospital
Feb. 28-March 23 in Sherman Oaks Hospital
March 23-30 in West Hills Rehabilitation
March 30-April 4 in Sherman Oaks Hospital
April 4-May 20 in Studio City Rehabilitation
May 19-20 UCLA Reagan
May 20-June 5 Southern California Hospital Culver City/Brotman
June 5-9 Sherman Oaks Hospital
6/9 Courtyard Plaza, ironically the same name as the office complex of her first neurologist, but not in LA County.