Signs of FTD

Here are some of the signs of FTD. These are from the behavioral variant of FTD. Although Lydia has the language variant, at times she did show some of these signs, but we didn’t know it as FTD yet, because she’d been misdiagnosed.

FTD Behavioral signsShe did have some spending issues–I’m not sure if she was buying multiples because she was going to give gifts, or if she was confused about where she’d put things and bought duplicates to replace them or what.

We saw signs of apathy, which we thought was depression due to the loss of her job at Wells Fargo in their Beverly Hills Wealth Management office in the banking fiasco of 2008, and then when she got another bank job working in a trust department of a bank, that bank was swallowed up by a bigger shark…I mean bank. I thought there was something wrong with Lydia when it took her FOREVER to finish the book, The Help, after the Trust Department job was eliminated.

FTD Behaviors

Lydia, a lifelong coffee drinker, could no longer do the steps she needed to make coffee. She knew what the parts were, but couldn’t pour the hot water into the filter holder to make a single cup because her executive function was being affected. In the time after she was finally diagnosed, Lydia would tie…and retie…and retie…and retie her walking shoes. She also would take a decorative potholder to her room and clean dishtowels…over and over and over again. We’d never seen anything like that, but these were compulsive behaviors and hoarding. After her longer stay at ULCA Medical Center, she would take place mats to her room…over and over and over again. We at least knew she had FTD at this point.

Lydia did have periods of agitation, which started after one of her medications was tapered off too quickly after her grand-mal type seizure.

FTD BVT Diagnosis

Lydia did a lot of pacing from her long stay at UCLA Medical Center in 2014 until around March of 2018 when she started showing signs of Parkinsonism which made her lean forward while walking like she was Usain Bolt taking off from the starting block at the Olympics. One of the medications she was on was eliminated, she is on a decreased dose of one anti-seizure med and is on a newer one to help manage the symptoms.

FTD Genetics Pathology

These screenshots are taken from https://www.theaftd.org/what-is-ftd/ftd-disorders/behavioral-variant-ftd-bvftd/