Giving Tuesday: Robin Williams’ Lewy Body Dementia Diagnosis

Please help spread the word on “Giving Tuesday.” Like make it go viral in a good way….

I saw this article on the cover of People Magazine when I was at the dentist yesterday:  http://www.people.com/article/robin-williams-committed-facility-suicide-susan-williams

While I normally don’t read People magazine, the Robin Williams photo on the cover did catch my eye, since initially when I had heard about his death, I thought I had read about him having Parkinson’s. So I was curious. And sad.

When I was looking around to find out about TheAFTD.org’s upcoming events, I saw that today was the start of the conference:

International Dementia with Lewy Bodies Conference, Fort Lauderdale, Florida

Held in the United States for the first time this year, this conference focuses on dementia with Lewy bodies (DLB), also known as Lewy body dementia, which includes DLB and Parkinson’s disease with dementia. A particular focus of the conference this year (Dec. 1-4) is on the prodromal aspects of DLB.  http://www.theaftd.org/4conferences/international-dementia-with-lewy-bodies-conference-fort-lauderdale-florida

 

While I have said there is no celebrity for increasing awareness for FTD like Lou Gehrig and ALS or Michael J. Fox and Parkinson’s or Ronald Reagan and Alzheimer’s, there is a documentary Looks Like Laury, Sounds Like Laury that will be coming up again in one week.

http://worldchannel.org/programs/episode/arf-s3-e310-looks-laury-sounds-laury/

On TV:  Tuesday December 08, 2015

I’ve seen this documentary with our parents. This stylish Laury looks a lot like my sister Lydia, and it was helpful since we now have a little bit of a roadmap from this spring as opposed to just being blind.

Laurydocumentarychat

Another irony was when I was looking to get the correct name of the actress on Orange is the New Black who worked on this documentary, I again went to People Magazine and found this:

http://www.people.com/article/looks-like-laury-sacks-documentary-early-onset-dementia

People Magazine seems to be doing a better job of getting the word out about this than the bigger media, like when:

Dr. Sanjay Gupta (CNN.com) mis-informed about FTD

anevolutionoflove.blogspot.com/…/dr-sanjayguptacnncom-mis-inform…

Apr 23, 2009 – He gave a response to a question regarding FTD by discussing Alzheimer’s disease – he did not seem to know about the diagnosis of FTD….

CNNGuptaFTDerror

Like one of my sister’s doctor said this spring when I asked if he knew about FTD, he said “I read about it in medical school.” Maybe Dr. Gupta knows more about FTD now.